 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Unfortunately I welcome you to this terrific site.
Yes do investigate alternatives but stick with those offered by CCC's. Paul is our resident Proton Therapy or IMPT expert and I'm sure you will hear from him. I'm not sure if it's applicable to your Dx but do listen to what MDA says.
Do get a dental exam by a dentist that regularily does pre oral cancer treatment exams.
Do get the fluoride trays and start using them asap.
Do get blood draws for TSH pre Tx.
I assume they will also recommend Cisplatin and I would get a pre Tx hearing test to establish a baseline.
Do start eating all your favorite foods and start adding pounds.
Do keep us posted.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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