Welcome to OCF, Roger! Thanks to Jim you have found a great source for info and support to get you thru the next few months.

You are talking about 2 top notch comprehensive care centers (CCC's). This is the best places to go for treatment. Not many here have done the proton therapy but a couple have. Most of us have had IMRT.

I think there is a Hope Lodge next MD Anderson. There are several members who are from that area so hopefully one of them will confirm this. From what Ive heard about these facilities, the patient needs a caregiver with them. Oral cancer treatments are not easy for most of us, unless you are one of the very few lucky ones who sail right thru you will need help and want someone with you.

Yes, you are correct... the after effects can be terrible and long lasting, some are permanent. But, its so much better to be alive to complain about issues than the alternative. One common link Ive noticed over the years is that the better a patient does with their intake, the easier of a time they have of everything. Beginning right now start taking in a minimum of 2500 calories and 48-64 oz of water every single day. Keep that up until (at the very least) you hit your one year post rads anniversary and you will fare better than most. Also start eating all your favorite foods now as your sense of taste and ability to eat will change for several months making eating a challenge. Most OC patients have lost significant weight which is NOT good at all. It mean they are malnourished and this in turn makes them struggle thru treatments and recovery.

Begin making a list of everyone who offers their assistance. Take down their name and number. tell them when the time comes you will let them know what they can do to help. This could be important later.

Get a thorough dental exam and flouride trays made. Have a complete blood work up including thyroid and testosterone. Both things have a habit of being affected by radiation.

Find things to do to keep your mind occupied. Reading a book, watching movies, or anything that takes concentration will help keep your mind off worrying and make waiting easier.

We are here to help both you and your caregiver. When the going gets tough its ok to lean on us. We have been there and done that and speak from experience.

Best wishes!