Hi Y'all. So my husband was just told on Tues, just a couple days ago, that he has tongue cancer. Has had a ct scan, and mri is tomorrow. We are being referred to an ENT 3 hours away. We haven't been told much other than a large part of his tongue will have to be removed/rebuilt from arm and thigh and a neck dissection. The appt lady said the first appt avail isn't until the end of the month, over 3 weeks away. (She doesn't know it was an appt re cancer.) So I am concerned that we won't know anything else, have questions answered etc for weeks. And isn't it better to begin treatment sooner rather than later? He's had this huge thing on his tongue since Feb. I am trying to figure out if this kind of treatment delay is normal or if I should be concerned and try to get it moved up? Sigh. Any advice would be much appreciated!


Husband tongue cancer 7/01/14 (forward/right half of tongue)
43 years old at diagnosis
Partial glossectomy/node removal 7/31/14
PEG tube placed
2 mos high dose radiation
2 treatments cisplatin, 3rd was cxld due to hearing issues
cancer in both lungs, stage 4, 05/18/15
chemo port to be placed on 05/21/15
Full scan on 05/21/15
Chemo, 3-4 types (names etc coming soon) for 7 mos
4th type depends on clinical trial and if placebo or not
He is planning to defy all odds and kick this cancer!