Hi Paul,

thanks for the reply, I need to look into spohnc. I had actually forgot about them. i do have a number for them and i see they have meetings in baltimore, which is about an hour or so from me. All I seem to do is go to doctor appts, in fact I go to NYC on the 30th to see my surgeon Dr Urken and get another PET.

I have never met anyone else like me.

thanks. Gina

scc 4/2004 r side tongue, flr of mouth.
neck disection,4 lymph nodes 34x rad,3X chemo
10/2007 r cheek. remove w/graft. 40 HBO dives.
01/2010 r cheek. surgery w/graft
04/2010,surgery remove lower right jaw, reconstruct. 4x chemo 25x rad. clear margins. pet 8/2010 clear
July 2012 right side bot cancer. surgery to remove, clear margins
4/2013 Surgery to remove cancer in lymph node near thyroid, clear margins
6/2013 start of rad 25X Chemo 7X