 Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | Given the circumstances you describe, it looks to me like you have some nerve damage in your tongue, likely from one or more of the 10 surgeries (!) you've had. I have some non-cancer related experience with that in my right leg due to a couple of gun-shot wounds, one of which went squarely through the sciatic nerve.
This is a different problem than regular neuropathy, you need to talk with a neurologist about it, IMHO.
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
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