Hi DianneH,

I am so sorry to hear of your reoccurance. When I found out I was so terrified and full of disbelief that I did not know what to do. I went through Christmas in a fog as you describe. I don't regard myself as brave either, but I think we all untapped reserves that help us through. When I had the first treatment, I pictured it as once and done, and it seems overwhelming to go through it again. Yes, that horrible mask and radiation, this time with chemo stirred into the mix. But, there will come a time when it is done, hopefully for good this time.

I have both a feeding tube and a trach. I hope to lose the trach in a couple months. I imagine I will have the feeding tube for some time as I ramp up on my eating.

Good luck in your meeting with your reconstruction surgeon. You and I will both get through our ordeals. I am eager to hear how you progress. Best of luck to you!

Roger


Male, non-smoker, very light drinker, age 56 at diag.
9/18/12 - Diag. tongue cancer, left lateral border HPV 16+
9/24/12 - Partial glossectomy w/recon. Left side neck nodes removed
11/7/12 - Begin rads (30 treat.) and Cituximab (11 treat.)
12/26/12 - Rads compl.
1/18/13 - Cituximab compl.
3/13/13 - PET clear
12/19/13 - Positive PET
1/3/14 - Biopsy confirm cancer in tongue and 1 node (stage 4)
1/16/14 - Surgery - full glossectomy and and right neck dissect