I can give you my neuro-pulmonologist if you like, Paul. It seems to be a race to see if he retires before I no longer need him. I think my lungs are giving out now. Sure snuck up on me, just since November. Transplant may be one of the only options, just not for me. We talked about a trach and ventilator a year ago but I'm not sure that is even an option now. I sure liked it a lot better when it was just muscle weakness and I worked awful hard to regain incredible lung capacity and even built the diaphragm back to near complete capabilities.
Oh well, I guess we see what tomorrow brings. I still have a freezer full of ribs ready to smoke when spring finally gets here. O.o
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023