Hello Brian:
Congrats on joining the post treatment group. That in itself is turning a big corner regardless of how bad your symptoms are.

I guess I am very lucky because I didn't have any of the stuff you've got going. I'm 30 days post treatment now and mucositis and ropey mucous are about my only two problems. The rope is so thick swallowing it is impossible, I just have to gargle with warm salty baking soda water to soften it so I can hack and spit it out. When I can remember I take a daily Mucinex; that helps soften it too.

I can't comment on the postage stamp chunks you're having. Hopefully they will not last long.

Hang in there, it does get better. I can actually taste maybe 25% of what I eat. And being able to taste food will make you want to eat again.

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good