My husband still has his feeding tube and only eats 1-2 cups of pureed/pudding consistency food at night. If any chucks, he is not able to swallow it. Has done barium swallow test under x-ray which shows aspiration. Epiglottis does not close all the way. Did VitalStim and does daily exercises. He wants to know if others have tried any other treatments? He also did Hyperbaric oxygen to close the open jaw wound. He does still see his ENT and chemo doc. Who can he see to tell him if his is a permanent problem. After a year that is my fear and if that is the case we need to know that so we can move on and deal with it. Holidays are around the corner yet again and this will be another Holiday season without eating for him. Very depression.
Last edited by JonelleB; 11-17-2013 08:17 AM.
Jonelle(wife) SCC Rt tonsil, 1 node + with capsular spread Stage 4 10/26/12 Rt tonsillectomy, radical neck dissection Finished tx 1/23/13 30 radiation to both sides, 2 cisplatin PEG still in. Doing Vital Stim. Inside jaw now open to the bone.
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