OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I know I have not been on in awhile. I don't have Internet at home, and only use my mobile phone. I haven't forgotten about any of you. I am coming up on 4 years since recurrence. Things are going well, and got a good report from my ENT yesterday. Said the issues I'm dealing with are all rads related. Story of our lives! I have ulcers pop up and leave most of the time. I now have constant jaw type cramping pain, but still continue to teach. Have to take a break and wait for the cramping to go away. My baby girl will be 1 next month. All in all we are doing great! Sorry I've not been here in awhile. Think about you guys all the time.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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