 Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | cheryld,
as they say there is no substitute for experience. And your story shows that in spades. It is so unfortunate that more information is not handed out to new cancer patients. A few flimsy pages to go to ACS and a few local organizations is far short of what is needed. To be fair, the packet is more than a few pages but it still seems that about 80% of the common stuff discussed here could be boiled down and formatted into a survival guide to oral cancer.
it is reassuring to hear just how fast and how far someone that really knows the hidden highways can move when needed. thanks for sharing don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | 
