Just an update- steroids have been reduced by 1/2 last week and he's been doing everything at his normal pace again. No more aggression and he still has a "normal?" amount of energy. He's also eating better and getting better rest as he's not as wound up anymore. Huge change. I feel really fortunate for this advice.
CG to husband- 1/2013 lymphoplasmacytic lymphoma found 5/2013 1st round chemo stopped due to hole in hard palate. 6/2013 SCC found in maxillary sinus/hard palate. 7/2013 Removed tumor from palate + neck dissection T3NO. Has palatal obturator. Both smokers. Both want to quit. Will be done with 35 rounds of radiation + chemo + erbitux by October 10. Hemoglobin count up from 3 to 13! Lymphoma under control
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