You all are great! It means a lot to get such quick replies. Uptown- we just came home from the prosthodontist. I kept thinking of you in your car on our 3 hr drive home - as he crouched in the seat well looking for small pieces of a phone accessory. smile Fishmanpa- Thanks for being so direct. I really appreciate it and agree. Christine- He does give me plenty of alone time to decompress when I need it smile //Just an update: I talked with him about the steroids and he totally agrees that we need to address it w/ doc ASAP. At the same time, he expressed that he likes the extra energy and I know that means he's going to encourage the doctor to leave things as is. Meaning.. He'll ask the doc ?s the extent of "is it safe?" And then tell me I worry too much... So it'll be interesting times if I have to corner the doctor privately and put my foot down. We will see!


CG to husband-
4/2013 - lymphoplasmacytic lymphoma & scc hard palate dx
7/2013 Removed tumor from palate + neck dissection T3NO. Has palatal obturator.
4/2022- lymphoplasmacytic lymphoma mutation to Bing Neel syndrome, BTK inhibitor for tx
7/2023 - lung cancer, resolved with radiation