 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Try to think of the feeding tube as a temporary tool to get you thru a rough spot. I know all too well all the problems that go along with using one.
If you are able to sustain yourself for one month without needing to supplement your diet with the feeding tube then its time to get it removed. Im sure you cant wait but make certain you arent jumping the gun by pushing too hard to get it out, then have a set back and need it put back in. Relearning how to eat normally again takes lots of practice. I hope you arent being too hard on yourself with this. Many patients will continue to hang onto their tube for a year after finishing rads.
Best wishes!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
