 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | The reason for removing the dead bone is because the necrosis will continue until it reaches epic levels and the body cannot recover. Even removing may necessitate many operations or if they truly remove the dead bone and the live bones takes to the graft, you could be past this problem for the rest of your life. There are no guarantees in Cancer world but if you look at outcomes, there is a high likelihood the professionals know what they are talking about. Seek out second or even third opinions. Doing nothing is one of those choices that often results in bad outcomes. Doing nothing is a choice/decision and you are really the only one that has to live with it.
Be well but be vigilant.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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