I have a diagnosis of osteoradionecrosis from an oral surgeon at UCSF (the U of CA medical facility in San Francisco). The surgeon said I could
A. do nothing or
B. undergo a complex surgery to remove the dead bone and rebuild the jaw bone with a bone graft of bone from my leg.
I have chosen to do nothing.
But I am looking for a non-surgical professional who will monitor and manage my condition -- someone in the San Francisco Bay area.
Also I'm seeking input from anyone on these boards who might have useful information.
Here are more details.
I woke up one morning with a swollen jaw. My dentist sent me to an oral surgeon who after consulting with my radiation oncologist, pulled a wisdom tooth that day. Antibiotics cleared up the infection and I did 40 2 hour hyperbaric dives. The wound was healing if slowly. All was well for about 5 months Then another infection. Antibiotics again but swelling in area under my chin remained and suddenly I had trismus, a one finger jaw opening. I'm not in pain. I can still eat and brush my teeth and talk normally.