Hello all-
I was diagnosed with SCC on my upper right gum in September and had surgery that removed about 1/3 of my upper right jaw bone, associated teeth, and about 50% of the roof of my mouth.
Following surgery the PET Scan showed a very small amount of cancer in the margins, so I had 33 rounds of radiation. I finished radiation on 12/5/12, and have lost 30 pounds since diagnoses. I am a non smoker and non drinker. I understand there is no test for HPV for men. Is this true? I have not been sexually active (outside of marriage). As with all of us, this cancer was a shock. I was off work for 5 weeks but am back and doing reasonably well. I am tired, still have some sores, and have about 50-60% of taste. I am anxious about my next PET Scan in March, and also about the reoccurrence rates of this type of cancer. I appreciate the forum and reading everyone's info. Best wishes and prayers for all.

Eric

SCC 9/2012 right upper right maxilla
Surgery 9/27/2012 to remove portion of right maxilla
DX-after surgery cancer cells in margin
RAD-33 TX ended 12/05/12
2/13-current-Severe Trismus and Radation Fibrosis
6/13-clear PET
6/13-Infection in radiation area of mouth, with surgery to drain infection
8/13-ended 40 HBOT treatments
11/13-Clear PET
3/14-Botox injections for severe Trismus
5/14-Clear PET/ 11/14-clear PET
Male age 53, non smoker, non drinker