Hi, Friends.

I'm about 21 radiation treatments in and things are getting rough.

My PEG was placed about a week ago and I'm still getting used to the the bag and bolus feedings. I'm still an not even closed to my quota of 6 cans per day. Whenever I try to do a feeding more than 6 oz at a time, my PEG cap keeps popping off. I have learned that I must be very careful not to bend forward or squat for a distinct amount on time after I eat, but sometimes it just happens despite being very careful. I have had to tape the cap shut tonight and the thing just keeps getting gummier and gummier due the buildup of adhesive.

This is all very frustrating in that it's supposed to make my life easier and it making things so much harder right now as I cannot feed/medicate myself without help most times. I am taking in very little orally, except sips of water throughout the day.

I'm just looking for any quick tips from anyone before I have the VNA come out to help.

Thanks,
Kerri

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!