Not sure of the CCC reference. They used chemotherapy and radiation as an effort to save my anterior tongue, but I it failed. Although radiation and chemo may have slowed down the healing process I seem to be doing just fine. I guess I was young enough and otherwise healthy enough for the factors not to play such a big role.

I have no problem chewing, but since 90% of my tongue is just a flap that looks like a tongue, I can't "send it back" towards my throat, although so far I can raise the back of my tongue, almost normally. Therefore, my teeth are kinda just chomping away with no feel. I think it will improve, but I can't even get down the noodles in soup so far. At least not at rate where it seems to pay off.

Amd yes, right neck dissection.

Thanks for the protein suggestion. The protein mix could also add a few needed calories.

Last edited by Garrett; 09-28-2012 10:02 AM.

Wrong DX since 05
Tx Since 11/10 3 KTP laser surgeries
Correct DX Sarcoma Tongue 9/11
5 cycles doxerubicin + ifex 11/11
35x IMRT 03/12
Near Total Glssctmy/Right Nck Dsct + Trach + PEG 9/7/12
Recovering Nicely.