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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome! Im so glad you took my suggestion and have joined OCF! This is the very best site to get correct up to date medical info. You will find many knowledgeable members who will help you get thru everything you are facing. While facebook has its networking benefits, it is unmonitored and there can be alot of bad medical advice given. This site complies with Health of the Net standards to provide correct trustworthy medical info. What concerns me about your post is taking the lymph node that had cancer and then only taking the very next one which also had "just a little" cancer in it. You also wrote about your doctors getting almost all of the cancer. If you have not done so already, please seek out a major cancer center. I do not think what you have been thru sounds to be correct procedures from a cancer center. Before you do anything else get a second opinion. A major cancer center can make a huge difference in your treatment. You will have a team of specialists all working together on your individual case who have more experience in oral cancer than small facilities. Cancer Centers ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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