Thanks Donna. You are so right, each Cancer, and person, even hospital and doctors experiences are all different. This Cancer is persistent! I'm even getting confused with the recurrences.

10/09..Dx tonsil primary, BOT, Valleculla, 3 bilateral lymph nodes. Had induction chemo. Too sick to complete treatment, in hospital nursing home 6 months.

7/10.finally able to get a PET..Clear! 5 days chemo in 09 killed everything

10/10 Cancer free was short lived, it's back. two left lymph nodes, one which was new

2/11 35 IMRT, after teeth removed. chemo denied

7/22 30 HBO treatments did to infection, abscess, necrosis in jaw, back molar

7/11 Cancer still in left lymph node, another new one left side. Chemo, radiation denied

10/11 radical left neck dissection levels II-V. Cancer found in neck muscle removed. Chemo, and rads denied.

2/12 All Clear PET scan!

5/12 Cancer returns to level V. Lymph node or roaming cancer, had RND, so not much left. Two days before surgery on 6/22 Another cancer was found in level III left neck, and removed during surgery. Pathology says no clear margins, and perineural and Lumlho vascular invasion. Cancer likey to return. Chemo, Erbitux, rads denied by RO, and MO.

6/12 seeking other options. MSSM will do Erbitix, IMRT

I made a mistake, I had 4 recurrences, who is counting.

Last edited by PaulB; 07-07-2012 02:24 PM.

10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs