I'm so sorry, Funnygirl.

Life is so unfair. I just don't understand it. I hope that you can get a timely, fresh perspective that offers some hope. We all need hope. I wish this for you!

Is the cancer still localized to the BOT? I'm assuming that they checked you for distant mets?

Please lean on us when you feel the need. Please keep us posted as you are able. I'll be keeping you in my thoughts.

xoxo,
Kerri

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!