My husband had stage 4 BOT cancer with several lymph nodes involved. He had the Cistplatin, Taxotere and 5fu. The he had 60IMRT with Erbitux. Finished in October and went back to work in Alaska on the Artic Slope on January 5th. Has been going strong since. Your husband WILL lose weight so it's important to bulk up while he can eat. Once tx starts nutrition and water are a must. Is he getting a PEG tube and a port?
None of it is easy, but in a blink of an eye you'll be looking behind you. Take it one day at a time and be sure to stay on here for support for both of you, but mainly for YOU. Caregiver is a very difficult role and you will be completely overwhelmed by the feelings of helplessness sometimes, but, a good cry and you get back to it!!
Keep in touch and feel free to personal message any of us.
Blessings,
Kathy

Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14