I found that eating first was a little scary because nothing tasted like what I thought it should or would tast like; then sometimes swallowing directed the food out my nose; now it's hurt or miss on where it goes based on changes in texture. I tried watermellon and learned no more of that stuff. The mouth and throat were arguing whether it was liquid or solid so some went into my esophagus, some into my airway and some out the nose. The full trifecta! You just learn to adapt and sometimes your new normal never stops but remains dynamic but you still adjust.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023