Thank you Christine, the link you posted was interesting, some good information to consider. The extremely tough part for us comes from our son's MMR/epilepsy history. As terrifying as SCC is to deal with, epilepsy was no cake walk. Our son also had drop attacks that would come on suddenly, bouncing his head off the concrete. I couldn't help but wonder how many times that could happen before one day it would crack his head open. I will never forget holding my toddler through uncontrollable grand mal seizures and feeling horrible for having given him the MMR shot to protect him. So now, we are on the horns of the dilema, do we risk the return of the monster that is full blown epilepsy...or the monster that is SCC BOT cancer. Not an easy choice.


wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED