Hello, Plantgirl.

I haven't consistently been on the forums for a few weeks, now, so I am just learning of your recurrence. I am so sorry that you are going through this at all, let alone for the third time! Like others have said, I am so grateful that it is localized.

I did not have chemo/rads, so I can only go by what I have learned through OCF, but it seems that rads is what KILLS the cancer and the chemo prevents or slows down the spread while you are getting treatment. Someone here, correct me if I'm wrong.

My advise to you, other than getting a second opinion (this is your life), is to write down all of your questions and get them all answered. Keep a notebook handy at all times so that when a question arises, you can jot it down while it's fresh in your mind.

I give you my best wishes in this battle. I will be holding you close in my heart.

With great care,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!