Hi Samkl

Like you, I thought that we were somehow being "ripped off" by not having any more scans after the first post treatment one, and like you, I was concerned because so many on this site had multiple scans.

I am now ok with the idea after reading as you have, that it is within guidelines and also realising a recurrent tumour would be visible to a doctor looking for it (or signs of it anyway). My reading suggests a visual check seems to be at least as good as a scan.

The only problem is that distant mets would not be picked up with visualisation. I still worry about this but the oncologist seems confident that careful history will point him in this direction should it be needed. Unsure what the pointers are but assume Alex might start feeling tired, losing weight again etc.

I figure that Alex is our oncologist's success story so he also has a vested interest in making sure no nasty distant metastasis sneaks up on us all.


Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight