Ilyse,
Wow, you have quite a story. You are so right about us having to be the vigilant ones. It is difficult to know where to draw the line sometimes, especially when it is so easy to worry.

I think a schwannoma is really slow growing--what do the docs say about that in relation to your oral cancer? I had an extremely slow growing sarcoma that was unaggressive in that it did not metastasize, nor infiltrate other organs except for the stomach which is where it originated. I have often wondered since if having a tumor like that made it easier for cancer to establish in my body. No medical person can answer that one for certain.

At any rate, I am glad for you that you are past treatment.
My thyroid lost function following surgery/chemo/radiation. After being on synthroid for 8 months I am finally feeling much better.

Thanks for sharing your history.
Anne


SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021