 "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | I read your post a few hours ago but did not know how to respond Wayne.
I have now read Christine�s post and realise it is OK to have no words to express how I felt reading it.
Don�t know if you have the same expressions but it reminded me of the one you probably know. It must feel like you are "between a rock and a hard place�.
Sorry that pain pills etc. are your only option at the moment but hope they keep you comfortable.
Love and hugs
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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