 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | So sorry to read your post Sally! It must have been a very scary time for you having the PET come back like this.
PET scans are known for false positives. Ive had it happen to me. Im not saying this is the case in what happened with yours. Im just giving you some info about PETs. They will light up when there is an inflammation, an infection or even scar tissue. I hope what made yours light up turns out to be nothing. Please do yourself a favor and do your very best to stay busy to keep your mind from going to the "what if's". Best wishes!
Kelly, not sure what you meant with your post about moving a persons tongue around. PET scans do not have anyone physically examine you to have it done.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
