Thank you SO MUCH, Eileen for responding to my post. I was getting worried. I don't seem to have a very supportive family, so you guys are my lifeline to sanity. :-) (such as it is)
I only spoke very briefly with my doc over the phone, and was in such complete shock that my brain literally quit working. Thanks for giving me some pertinent questions to ask. Will Medicaire pay for the prosthetic larnyx? When you say some of these proceedures fail, exactly HOW do they fail?
I'm sure my doc-being the head of oncological surgery at Emory University here in Atl is familiar with the proceedures and risks you mentioned-it's just going to be quite a while before I can speak with him again. I'll be going to a medical oncologist next Fri (also Emory), and he'll prob suggest chemo, which hopefully would buy me some time. Any research you can suggest would be greatly appreciated.
How do I access this Doc's blog on the site?
Plesae anyone, feel free to email me direct @ [email protected] if you prefer- I need help!


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!