 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Welcome aboard our slow freight train to hell and back. I'm not one of the lucky ones as most posters here aren't and it's been a long slow journey. I sure can't add to what's been said by the others but dio want to wish you nothing but the best and I pray the Dr got it all and you won't need rads, chemo or seed implants. Lost teeth, most of my tongue, taste buds, except for the 1st food in, and lots of weight. I think the only thing I wouldn't do over is the implants. It is 24/7 pain and wishing. LOL Oh for even a piece of good old bacon. Get em girl and show this stuff you are the boss.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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