There are several posters here who have dealt with AdCC. If you type adenoid cystic in the search box at the upper right of each forum page, you'll get three pages of results. You can then contact a poster by clicking on his or her name next to the post -- that will enable you to either send a private message through OCF or click through to his/her profile for an e-mail address.

As for clinics in Europe: OCF has a number of members from the UK, and I recall at least one poster -- Peter_Stuttgart -- from Germany.

You've come to the right place for information and support.