Hi all

I am really happy to see so many positive words around here and it makes my life brighter. The situation is, my dear wife Natasa, mother of 2 beautifull little boys, born in 1972, was recently diagnosed with Adenoid Cystic Carcinoma of the submandibular gland. She undervent surgery, gland was removed and one lymph node cancer has spread to, together with local lymph nodes, it all was removed. We are still waiting for the finalo pathological reports, but it seems to be low differentiated, G3 tumour. Doctor told us radiation will most probably be done after they have consilium.

Since I we are living in Serbia, that has good doctors, but not so good equipment, any recommendations regarding clinics in Europe would be really helpfull.

Also any advices about that particular type of cancer would be great.

Thank you good people, may the God be with you

Sorry you had to join us, but you came to the right place. I can not answer your questions, but I am sure others on here can. This a hard thing to go through and we are here for you and your wife.

There are several posters here who have dealt with AdCC. If you type adenoid cystic in the search box at the upper right of each forum page, you'll get three pages of results. You can then contact a poster by clicking on his or her name next to the post -- that will enable you to either send a private message through OCF or click through to his/her profile for an e-mail address.

As for clinics in Europe: OCF has a number of members from the UK, and I recall at least one poster -- Peter_Stuttgart -- from Germany.

You've come to the right place for information and support.

Welcome to OCF. You will find lots of info on the main pages of OCF. There is also a search function there as well. Not too many members have had that type of cancer. My advice would be to get as many people lined up to help you during the time your wife has radiation. Even if someone would take the children for a few hours or a day it would give you both a break. When your wife is able to eat she should try to eat all her favorite foods. During radiation, the ability to taste and eat can be dramatically changed so its best to gain a few pounds now and eat all her cravings.

Hope your wife recovers quickly from the surgery. Best of luck.

Here is a link to the foundation's page on ACC. Wishing your whole family well as you go through this journey.

http://oralcancerfoundation.org/facts/rare/ac/index.htm

Thank you very much for kind words. Right now I will try to learn as much as I can about radiation therapy. Do you know if any medicines are recommended to make it easier, like Cesium, Oxygen, etc?

Hi
I had ACC too although it did not spread to my lymph nodes. Any thing I can help with please ask.
PJ