Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I too have a tingling in my tongue and according to my ENT a lot of scar tissue which is painful. I am still using my painpatch and afraid to come down anymore, because I do not want to feel any of the pain. My ENT did tell me it may not get much better than now, but it is not going to get much worse either. I hope he is right. The wonderful gift of radiation. I also try to look at it in this way: I am cancer free and knowing that the pain is not from cancer but just the side effects I can live with that.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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