I'm writing for my dad who is scheduled to have a total glossectomy next week at Hopkins. His BOT tumor is rather large and, although we have investigated other treatment options, we've been told that removing the tongue is the only way to go. They are not sure if they will need to remove the larynx but we should hopefully know this before he goes into the surgery. Has anyone gone through a similar situation? We have an idea of what to expect but it would helpful to find someone that has gone through the same thing. My dad knows that this is going to be anything but easy but we hope and pray that there is a light at the end of this dark tunnel.

Alison (daughter of Bill)