Well, I saw my Oncologist this afternoon and he checked me good. He told me I might not have lost my hair, but I sure do have some severe radiation burns on my tongue, under it, throughout my mouth and into my throat. This seems to be getting worse as time goes on. He was awfully glad I was smart enough to tell the Dr at West Virginia University Hosp that I wasn't going to let him cut me up. He said that was the best decision I have made. He offered me more pain pills but I declined. Now I have 6 months before the next appt. I told him about the trouble I have eating and he said it will continue this way for a long time. ZOWEEEEEEEEEEEE LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here