Once I had been eating orally 100% I called the gastro and had my PEG removed. Only after I had done that did I find out that my MO had a different idea and wanted me to keep it a bit longer. OOPS. But too late, it was gone. However, depending how your weight is holding up and how your nutritional intake is, I would say to wait until you are sure you can get enough calories orally. After I had my PEG removed I lost an additional 20 pounds, so it was obvious that I was not getting enough nutrition orally and should have kept using it for a bit longer to supplement with Ensure.


DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10