Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I am striking back and am hoping to keep ym spirits high. The times get really hard when the kids start asking why I have tube or why they can not come cuddle with me anymore. I simply have to tell them because you kick in the middle of the night and that hurts my stomach. My seven year old asked me "When is it going to get bad?" That was a hard question because I could not answer it.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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