OK - here is where I am: The team of doctors have tried to dilate my esophagus using the through the mouth and peg opening at the same time = failure, a month later one of those docs then went through my mouth with a pediatric scope and made good progress until he hit a tissue barrier. They want to try again. The first failure was related to fibrosis so the opening of my mouth was to small.
Do any of you have any ideas on how to get my mouth open wider or hospitals that are well equipped to handle a case like mine. My docs are not bad but I am their first failure. I have an appointment with them mid day next Monday the 9th. I am approaching two years of not being able to swallow my own spit and my patience is wearing thin. Wish me luck.


11/1999 SCC tongue - surgery
1/2000 Met(s) in lymph nodes - modRND
2/2000-4/2000 RT ~6 weeks
end of 2006 SCC tongue - surgery
1/2008 SCC BOT - surgery / PEG installed
2/2008 chemo & RT
4/2008 last time I consumed solid food by mouth