Hi Jeanna, it has been awhile since you posted so you may have already got a second opinion. One suggestion I had was to see if you could talk to your husbands Dr without your husband around. In my situation I have always been too afraid to come out and be blunt with my questions when my wife is around. After her main operation and neck dissection, we had to go to a training on taking care of her trache. Dummy me, kept asking questions about the care of it until my wife finally broke down crying. Since then I have always tried to tread lightly but from reading your posts, it sounds like you have the same questions everyone has in that position. Hope you have been able to get answers to your questions and your husband is doing well.


Tom-CG to wife, Pam 46@dx
Stage IV Tongue Cancer T2N2C
Dx 6/08, Surgery 7/08, 3 nodes positive
9/08 33IMRT/7Carbo/Taxol
4/09 node biopsy positive, mets to lungs/stomach
5/09 Cisplatin or Cis/Alimta study
6/09 Cis/Taxotere
9/09 Taxotere
1/10 Xeloda
3/10 Cetuximab weekly
6/29/10 lost battle