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Scared and confused #195874
03-13-2018 01:27 AM
03-13-2018 01:27 AM
Joined: Apr 2008
Posts: 7
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gmas Offline OP
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gmas  Offline OP
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Joined: Apr 2008
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Hawaii
Hello...I am pretty scared right now and looking for support. Have had a white spot/bump on top of left side of tongue. It is round and hard to touch. I am 54 yrs old and am a former tobacco chewer. Quit in 2011 and drink moderately as well. It has been there for 2 weeks and dentist referred me to oral surgeon who i see tomorrow. It hasn’t gotten better in two weeks and is hard when i feel it. Not sure if it is tongue cx or not and really worried about tomorrows dr appt. when i look on line for any info, the results are pretty discouraging too. Just looking for support during these stressful times.

Re: Scared and confused [Re: gmas] #195875
03-13-2018 04:07 AM
03-13-2018 04:07 AM
Joined: Jun 2007
Posts: 10,185
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ChristineB Offline

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ChristineB  Offline

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Im very sorry you are here for another scare!!! Hopefully this will turn out to be something other than cancer. During the past 2 weeks have you continued to drink? If so, I highly recommend stopping completely to give your sore a chance to heal. If you are using a mouthwash that contains alcohol stop using that as well. Resist the urge to touch it, just leave it alone. As you already know... any sore that has been in your mouth and has not healed on its own in 2 to 3 weeks should be checked by a professional. There's many things your spot could be besides cancer, Im hoping its nothing serious.

Best wishes with tomorrows appointment. Please let us know how you make out.

PS... Try to avoid Dr Google. Put in enough info and it will come up with a million crazy things your spot is. That only causes more stress which isnt good for anyone.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: Scared and confused [Re: ChristineB] #195881
03-13-2018 05:23 PM
03-13-2018 05:23 PM
Joined: Apr 2008
Posts: 7
Hawaii
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gmas Offline OP
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gmas  Offline OP
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Joined: Apr 2008
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Hawaii
Thx. I have quit tobacco since 2011. Moderate drinking. Funny thing is that this bump gets smaller at different timea of the day if that makes sense at is perfectly round and on top of tongue. Consult from oral surgery tomorrow and then I guess we’ll go from there.

Re: Scared and confused [Re: gmas] #195883
03-13-2018 07:34 PM
03-13-2018 07:34 PM
Joined: Jun 2007
Posts: 10,185
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ChristineB Offline

Administrator, Director of Patient Support Services
ChristineB  Offline

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PA
If the bump's size fluctuates then its unlikely to be a cancerous tumor. Thats not how cancer presents itself. A cancerous tumor stays the same size, it wouldnt change.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: Scared and confused [Re: gmas] #195884
03-13-2018 07:42 PM
03-13-2018 07:42 PM
Joined: Apr 2008
Posts: 7
Hawaii
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gmas Offline OP
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gmas  Offline OP
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Joined: Apr 2008
Posts: 7
Hawaii
Understand. It just feels like it changes sizes during the day. Really only way to tell will be to discuss with oral surgeon tomorrow and hopefully they will do a biopsy.

Re: Scared and confused [Re: gmas] #195893
03-14-2018 06:54 PM
03-14-2018 06:54 PM
Joined: Apr 2008
Posts: 7
Hawaii
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gmas Offline OP
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gmas  Offline OP
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Joined: Apr 2008
Posts: 7
Hawaii
Went to OMS today and after much poking amd prodding neck, jaw and oral cavity he chose to do a biopsy and basically took what was there on top of tongue. That was THE worse procedure i have ever had (to date) and the pain now is agony even with the pain meds. Not sure how long this post biopsy pain will be with me (tongue and jaw pain, difficulty swallowing, no food, etc). And that is the easy part. The waiting for results is going to be worse. Any tips for post biopsy comfort?

Re: Scared and confused [Re: gmas] #196022
03-31-2018 08:46 AM
03-31-2018 08:46 AM
Joined: Aug 2011
Posts: 596
MA
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Kerri Offline
"Above & Beyond" Member (500+ posts)
Kerri  Offline
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Joined: Aug 2011
Posts: 596
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Hi, gmas.

I hope you're healing well after your biopsy. Yes, they are very painful! I had mine when I was pregnant and they wouldn't give me much pain medication other than a few Tylenol with codeine. Horrible!

Hopefully, all is well and your biopsy results came back negative for cancer!

Take care,

Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!

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