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Mokie #199428 11-13-2019 02:33 PM
Joined: Jun 2019
Posts: 244
Likes: 2
"OCF across the pond"
Gold Member (200+ posts)
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"OCF across the pond"
Gold Member (200+ posts)

Joined: Jun 2019
Posts: 244
Likes: 2
Hey Mokie,

2 weeks post rads and I'm enjoying that my mouth is getting more sores. I had one that burst in the night, that wasn't fun at all!
The fatigue is still there but my mouth is slowly healing. I'm still using the PEG for nutrition as my throat is very sensitive and I cough a lot when I swallow liquid. I've been checked out by my team and they're satisfied I'm not aspirating, it's just my throats sensitivity from the rads. It will go once it has healed.

I have a little bit of mucosis, which makes me cough at night so I've been sleeping on the sofa so that I don't disturb my husband. Plus I can get my head at the right angle than when I'm in my bed. Plus I also get the dry mouth too, lol. So my nights are broken and some days I do have to have a nap or 3, but I am doing fairly well.

Rainbows back to you my lovely


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
CM57 #199429 11-13-2019 02:41 PM
Joined: Jun 2019
Posts: 244
Likes: 2
"OCF across the pond"
Gold Member (200+ posts)
OP Offline
"OCF across the pond"
Gold Member (200+ posts)

Joined: Jun 2019
Posts: 244
Likes: 2
Hey CM57,

I'll speak to my team to see what the UK brand version is. I've tried using biotene gel but it's not very effective, plus I don't have a tongue so I can't move it around my mouth when I'm asleep.


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients
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