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#199354 10-30-2019 01:24 PM
Joined: Oct 2019
Posts: 1
Noble Offline OP
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Joined: Oct 2019
Posts: 1
Hi. I feel like I have been thrown into radiation very quickly after surgery to remove squamas cell from gum and cheek. Stage 2. Margins were close. I am looking into proton radiation at Univ. Of Cincy.
Has anyone had experiences and are side affects much less than traditional? Thank you


Jana Noble
Noble #199367 11-02-2019 06:02 PM
Joined: Jul 2012
Posts: 3,267
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Patient Advocate (old timer, 2000 posts)
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Joined: Jul 2012
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Noble,

I’ve had Proton Radiation about five years, which is the most precise and strongest type of radiation we have in the U.S., and believe it helped cure my cancer after four years and 7 recurrences and primary cancer.

It’s good you know of a center that drs it as the are about 29 places. There is a newer type Proton Radiation that is administered like IMRT called IMPT, as earlier type is timely as rad setting or zap. actually protons makes no noise unlike the zaps with IMRT, which I did twice. I did iORT twice during surgery and finally Proton Radiation.

Previously, it was restricted to certain head and neck cancers and recurrences. Now I understand it’s available to first line patients. You would need to be evaluated by the Proton center to see what’s best.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Noble #199380 11-04-2019 01:00 PM
Joined: Mar 2018
Posts: 34
Contributing Member (25+ posts)
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Posts: 34
I had Proton therapy 35 treatments plus weekly Cisplatin back in April-May 2018. It was a rough go and I'm not sure my side effects were any less than regular IMRT. What was the main concern for me was the hope of less future damage from Proton and time will tell if that is a benefit or not.

18 months later, I feel like my old self with dry mouth only at night. Hoping thats the worst of the damage done.

Best of luck to you!

Linda


Stage 3 SCC of tongue/floor of mouth. Originally Stage T1N0M0 but one pesky lymph node discovered in neck after resection.
Now T1N1M0
Surgery 2/16/18 at UAB.
30 Proton Therapy Treatments
Cisplatin Chemotherapy

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