| | Joined: Sep 2016 Posts: 111 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Sep 2016 Posts: 111 | Ok. A lump is only a lump until someone tells you otherwise.
5 years out from my hemi glossectomy, almost to the day. I felt some lumps along my right jaw / chin. (The hemi glossectomy was associated with my second cancer diagnosis in 2014.) Then the pain hit. I followed up with my ENT and after he probed a "curious looking" mass under the right side of my tongue which immediately started to bleed. To summarize a long story - CT Scans / MRI have shown the mass is located under the right side of my tongue and has grown to encapsulate the right side of my chin and right jawbone. So, I'm back for the third time...…..
Some additional information - I had been having issues over the last two years with uncontrolled bleed from my throat / mouth. Two of those issues resulted in hospital admissions, but no defined source was determined. (several ct scans / implantation of stents and coils) The consensus was "pseudo aneurisms" due to radiation treatments and brachytherapy from 1997 and radiation treatments from 2014. The most recent issue with the bleeding was from May 2019. (The new tumor did not show on the May 2019 CT Scan.)
Has anyone else had experience with bleeding from a non-determined source?
I'll have to update my signature.
1997 SCC Tumor on tongue - Partial Gloss
1997 Met to Lymph
Radical Neck Dissection / 2nd Partial Gloss
6 weeks chemo and radiation
Brachytherapy
2011 Stroke
2014 Recurrence SCC at Base of Tongue / Hemi-gloss
Free Flap reconstr from thigh
PEG Tube
Radiation
Permanent Issues with speech and swallowing
2018 - Bleeding throat / mouth
2019 - Bleeding throat / mouth
2019 - 3rd diag Cancer SCC Base of mouth / jawbone
2019 - Aug remove portion of jaw / right pec det / free flap closure and tongue
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | I am so very sorry to read about your recurrence!!! The timing makes it even worse, so soon after hitting the coveted 5 year mark. The entire situation stinks! Im sure its not easy to mentally handle the unexpected newest diagnosis.
Best wishes with everything you are going thru!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2019 Posts: 77 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2019 Posts: 77 | , hello BJM,
I see you've endured radiation treatments Twice.
I just had my 6 th tumor, at 1 year post VMAT ( A type of IMRT)-- We are considering it a New Primary, and I had surgery April, which revealed it was Yet Another invasive SCC with deep Positive margins, thus I had even more extensive surgery May 14.
And I've a new diagnosis -- Field Cancerization.
Anyway, I volunteered for more Rads, to clean up the area because the front margin was 1 Millimeter. Too close !!
I have lots in common with your profile, but not the bleeding part. But yep, it could be from tissue & vascular damage, from radiation.
So, what are your options now?
Hang in.....
Crystal | | |
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