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| | Joined: Jun 2019 Posts: 6 "OCF across the pond" Member | OP  "OCF across the pond" Member
Joined: Jun 2019 Posts: 6 | Hi
I am Hazel and am 10 month post radiotherapy for tonsil cancer h p v 16 + with several affected lymph nodes. Treatment was 35=sessions of radiotherapy and 2 Cistplatin chemotherapy.
I am now 62 year old female who is a wimp but I found positive mental attitude was the way to go for me I was going to kick cancers butt. I did got the all clear =14 January this year .Now on check ups for next 5 years.
My main issue is lack of saliva which I know is a common theme ,but omg until you experiences it I had no idea how much work our saliva did . I use xymelts at night which are a awesome..
I am a non smoker and non drinker haven’t had a drink really in years don’t like the headaches nothing against a drink just can’t cope with head.
Food wise meat Ian still very difficult and bread but toast is fine.
Look forward to many discussions on here
Onward and upwards
Hazel
Diagnosed June 2018 T2N2NM0.H.P.V 16+
35 radiotherapy sessions V M A T
2 chemotherapy sessions Cisplatin
lives in the U.K.
14 Jan 2019 pet ct scan showed cancer free.
on going hospital visits for next 5 years.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF, Hazel! Im glad you found our site! OCF is the largest online oral cancer (OC) site dedicated to providing correct and up to date medical info for OC patients and their caregivers.
Its always great having survivors join our ranks! Being 10 months post rads, you are still in the middle of your recovery phase. The worst of everything is many months behind you. A complete recovery takes 2 years after finishing rads. You should notice more improvements with your dry mouth and sense of taste here and there up until about the 2 year post rads mark.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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