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Question about long term dry mouth #197748
01-03-2019 01:05 PM
01-03-2019 01:05 PM
Joined: Jan 2003
Posts: 109
Kansas
W
WZ Offline OP
Senior Member (100+ posts)
WZ  Offline OP
Senior Member (100+ posts)
W

Joined: Jan 2003
Posts: 109
Kansas
I am 16 years post treatment this and I noticed that my dry mouth symptom is getting worse and worse since last June. During day time, I have to sip water every 15 ~ 20 minutes otherwise, My mouth will feel very sticky. Needless to say, every morning my mouth is sticky and burning, I talked to ENT doctor asking for medicine to stimulate saliva but the doctor said it has been so far out from radiation, the medicine won't work any more. I am wondering if anybody here has experienced similar situation like this, and how do you handle it?


Thanks a lot


WZ | Stage 4, Tonsillar Cancer Aug, 2002
Re: Question about long term dry mouth [Re: WZ] #197830
01-24-2019 02:41 PM
01-24-2019 02:41 PM
Joined: Apr 2017
Posts: 61
Valdosta,Ga.,USA
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WendyinGa Offline
Supporting Member (50+ posts)
WendyinGa  Offline
Supporting Member (50+ posts)
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Joined: Apr 2017
Posts: 61
Valdosta,Ga.,USA
Im only a year out from surgery, but I still experience dry mouth...I use Xylimelts. They work great...also Biotene spray.


04/21/17 Biopsy at ENT
04/25/17 Biopsy result SCC on left side tongue
04/27/17 CT Scans--shows shallow tumor
05/02/17 Pre-op
05/03/17 Surgery to remove tumor
05/08/17 Cancer still present
05/10/17 2nd surgery-
06/05/17 PET on 6th, RADS start on 06/20/17
07/11/17 Halfway point!
08/01/17 Last treatment
11/1/17 Cancer is back
11/15/17 Emory University surgery. neck dissection, left lymph nodes removed, tongue free flap from left arm with skin graft.

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