Posted By: maritisio Dysplasia or not ? Extremly afraid... - 05-23-2018 05:13 PM
Hello, im 22 years old male, history of breast cancer but nothing else , sorry for my bad english
I have GERD and very bad dental hygiene

So here's the story :

One day I notice a small bump in my mouth.
Went to the ENT and i had a biopsy done 16 days ago

I got the result today but i didn't understand anything !! he just tell me to come in 6 month for a control ...

I manage to get the conclusion : :

The histological examination revealed a squamous mucosa, whose epithelial reverence was focally ulcerated and replaced by a fibrin-leucocyte coating. On the banks of this ulceration, the epithelium is the seat of a discrete cyto-architectural disorganization with mild to moderate atypia prevailing at the level of the basal layer.
The under-height chorion is the secret of a discreet inflammatory infiltrate
PAS staining does not show pathogen

Conclusion:

Mucus ulceration with mild to moderate atypia whose regenerative or dysplastic character is difficult to assert
Monitoring is necessary




I just have few questions :

- Its a dysplasia or a benign tumor ?
- Do I will get cancer in the long run ?




Posted By: gmcraft Re: Dysplasia or not ? Extremly afraid... - 05-23-2018 07:38 PM
Please understand that members of the forum are either patients or caregivers who have or are going through the cancer journey. We do not have the years of medical training to be able to “diagnose” you even with photographs. You won’t want us to, anyway, as it would be very irresponsible of us.

No two person will react in the same way. What may trigger cancer in one may not do so in another person.. No one, even the best doctor in the world, can predict if you’ll get cancer or not in the long run.

Good oral,hygiene is extremely important as it can impact your health eventually, irrespectively of whether you have a bump in your mouth or not. So, you really should start taking care of your teeth right this minute. Since the biopsy report suggests monitoring, maybe that’s what you should do. If I were you, I would go back to the doctor who did the biopsy and ask for a clearer explanation of what the biopsy results mean. The other choice you have is to take your report to another oral surgeon for a second opinion, or even a third opinion. That way, you might get the answers you are looking for.

Posted By: maritisio Re: Dysplasia or not ? Extremly afraid... - 05-23-2018 09:51 PM
[quote=gmcraft]Please understand that members of the forum are either patients or caregivers who have or are going through the cancer journey. We do not have the years of medical training to be able to “diagnose” you even with photographs. You won’t want us to, anyway, as it would be very irresponsible of us.

No two person will react in the same way. What may trigger cancer in one may not do so in another person.. No one, even the best doctor in the world, can predict if you’ll get cancer or not in the long run.

Good oral,hygiene is extremely important as it can impact your health eventually, irrespectively of whether you have a bump in your mouth or not. So, you really should start taking care of your teeth right this minute. Since the biopsy report suggests monitoring, maybe that’s what you should do. If I were you, I would go back to the doctor who did the biopsy and ask for a clearer explanation of what the biopsy results mean. The other choice you have is to take your report to another oral surgeon for a second opinion, or even a third opinion. That way, you might get the answers you are looking for.

[/quote]



Hi ,thank for your reply, I did the biopsy in a hospital so its very difficult for me to ask any question to the doctors, I already ask them this kind of question and they just tell me " Just come back every 6 month"

Im totally lost and I don't know what I have, I don't know what to do , I just don't want to come back in a hospital, i hate hospital
Posted By: gmcraft Re: Dysplasia or not ? Extremly afraid... - 05-23-2018 11:00 PM
However, to truly understand your condition, you need to hear it from your doctor. The other possibility is to email your doctor and ask for an explanation. If not, you must consider a second or third opinion.
Posted By: maritisio Re: Dysplasia or not ? Extremly afraid... - 10-23-2018 08:45 AM
Hello , just in order to keep you informed : , I made this thread some month ago, and i'm come back to tell you how it goes :

: After the removal, another lump appear is the same location just 1 week after , it wasn't like the first , I got it removed and examined : Hyperplasia but all cell are normal, no dysplasia , hyperplasia from inflammation
- After the second removal : Another lump appaer again just 1 week after, it seem like its from the healing process, I talked about it to an ENT , he just told me to come back every 6 month to do monitoring
- 1 week ago I went to an another ENT , he ask why I didnt get any CT scan and told me to do one, he told me he's not concerned at all about this lump and its probably nothing, he also told me come back with the CT scan result and the previous result (From biopsy...)

He also told me he will probably not remove it because he doesnt want to do surgery for nothing ,he will just do monitoring every 6 month

I will probably get it removed because i'm very very anxious, I don't want to come back every 6 month for that , just want to live a normal life

The nightmare is not over yet...
Posted By: maritisio Re: Dysplasia or not ? Extremly afraid... - 11-22-2019 09:07 PM
Hello,i'm here again after almost 1 year and 6 month

I still don't know why i get this lesion ! but it seem its very stable now, i dont have any suspicious sign

im still shocked and 'im taking a lot of medication and supplement in order to prevent any oral cancer ,

if anyone can help to understand the report because ent don't know why and its make me crazy

i refused any monitoring because i considered them very scary
Posted By: ChristineB Re: Dysplasia or not ? Extremly afraid... - 11-26-2019 02:28 PM
Unfortunately, we arent able to assist you in understanding what your ENT wrote. The members of our site are oral cancer patients and caregivers.... WITHOUT medical degrees, the many years of medical education, clinical patient experience, your complete medical history even immunizations and allergies could be relevant, and this is over the internet where you, the patient are not right here in front of us (not that it would matter as we are NOT doctors)  to examine and ask clarifying questions as all true medical professionals would do.  Our members help each other with things related to oral cancer (OC) and quite often we arent fully versed when it comes to other lesser ailments.  That said, we dont have the backgrounds necessary to help... please ask your physicians to get answers from someone who is qualified to answer it.

OCF members will always go above and beyond to help everyone as much as possible.  We've all been thru so many major medical issues and overcome some unbeatable odds with OC which is considered a rare disease.  We do understand your situation but please understand we simply are not the right ones to give you a medical opinion.  Thats what many here have done... gone for second or third, sometimes 4th opinions when we have something going on that requires medical attention and treatment.  You will need to find the very best medical care with doctors who are experts in this kind of thing. 

Since OC is a rare cancer, we do occasionally see new members join who are "positive" they have OC and often they will be convinced they're dying just from over using Dr Google which is NOT a reliable resource for anything to do with health.  The people that are the most adamant they're sick with OC, often are who will go doctor shopping seeking that one doctor who they feel listens to them and will look further thru medical testing to rule out a serious diagnosis.  Hopefully the medical professionals you have been seeing will be able to handle everything properly and that they're very experienced with treating OC patients.  Not that I think whatever you have is anything serious, I am not qualified to give my opinion on your situation no matter what it turns out to be.  OC is sometimes tricky to diagnose... so much so that even experienced doctors and specialists cant tell for certain what something is by visually examining you without doing a biopsy.  About a week after the biopsy, the pathologists report comes back with the biopsy results.  Hopefully whatever you have going on will resolve itself on its own.  Since there hasnt been any changes, hopefully its nothing serious. To know for sure, you will need to put your faith in the doctor you are seeing and ask them to thoroughly explain anything you need help understanding on their report.

Best wishes!
Posted By: maritisio Re: Dysplasia or not ? Extremly afraid... - 11-26-2019 04:52 PM
Thank you for your help ! i contacted the cancer center where I did the biopsy, im waiting for their reply ! i'm just afraid of having a mutation that could create more cancers in futur...
also thank you for taking your time to help people
hope you will be cancer free forever , you seem to be a good person
Posted By: maritisio Re: Dysplasia or not ? Extremly afraid... - 01-15-2020 04:55 PM
Hello just some update about my case if anyone have ever been dealing with the same thing

- I will get my whole medical record from this cancer center and try to figure out if its a true dysplasia or a reactive lesion
- i will get a genetic test to see if my tumor suppressor gene are working ( brca, tp53.,atm , xrp .. and fanconi anemia gene of course)

my father was a heavy smoker and drinker and never had a single tumor !
my mother died of breast cancer but it probably have nothing to do with oral cancer


i have 3 older brothers and sisters that are healthy

im still afraid of dysplasia recurrence but this was on palate , a site that dont have a big transformation rate, even in non smoker / non drinker

my ultimate goal is to get a whole genome sequencing and get some gene therapy to fix any damaged gene , but for the moment its just science fiction , it will probably possible in the next 30 years

actually i'm doing a lot of thing to decrease my cancer risk

this discovery changed my life forever


potential cause of this lesion :

- poor immune system : i got shingles and candida , disease that you can only get if your immun system is poor
- bad oral hygiene : i didnt brush my teeth for decades ... not joking...
- mechanical friction : mouth breather and gerd and acidic food

the lesion apparead after the death of my mother, maybe its linked, maybe not ...

more is unknown than is know at this time.
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