Scared. 3rd Times a Charm, Right? - 04-28-2021 10:56 PM
Hi,
I'm new to this support group but not new to HPV Negative Oral Tongue Cancer. I was 36 when I was first diagnosed April 20, 2018. I'm a non-drinker, non-smoker, Organic eating, Ultra runner. I live a beautiful life with my husband and 2 great girls 12 & 14.
I've been SO FRUSTRATED on this cancer journey where no one has taken me seriously. Doctors and dentists said I had burning mouth syndrome. After I lost my hearing I was finally sent to an ENT.
Anyways finally a biopsy revealed Invasive SCC, tongue and floor of mouth, 2nd reoccurrence July 2018. Celebrated 2 years Cancer Free this summer only to have it coming back for Round 3.
I'm being sent on to MD Anderson. I guess I'm on here seeking Hope. My end goal is to get my girls raised to graduate High School. Are there any younger 3+ Reoccurrence long term survivors willing to share their experiences? Advice? Thoughts? Inspiration?
Thanks in Advance,
Sarah Haller
I'm new to this support group but not new to HPV Negative Oral Tongue Cancer. I was 36 when I was first diagnosed April 20, 2018. I'm a non-drinker, non-smoker, Organic eating, Ultra runner. I live a beautiful life with my husband and 2 great girls 12 & 14.
I've been SO FRUSTRATED on this cancer journey where no one has taken me seriously. Doctors and dentists said I had burning mouth syndrome. After I lost my hearing I was finally sent to an ENT.
Anyways finally a biopsy revealed Invasive SCC, tongue and floor of mouth, 2nd reoccurrence July 2018. Celebrated 2 years Cancer Free this summer only to have it coming back for Round 3.
I'm being sent on to MD Anderson. I guess I'm on here seeking Hope. My end goal is to get my girls raised to graduate High School. Are there any younger 3+ Reoccurrence long term survivors willing to share their experiences? Advice? Thoughts? Inspiration?
Thanks in Advance,
Sarah Haller