How do you live with terminal mouth cancer? - 01-24-2020 08:51 AM
My mum has a recurrence of squamous cell buccal mucosa. She had surgery July 18 (flap/neck dissection) followed by 6 weeks radiotherapy.
In September 2019 she was diagnosed with a recurrence and has declined surgery, radiotherapy and chemotherapy as she doesn't want anything which will make her feel worse than she already does.
The tumour has now grown onto her lip, a hole is in her cheek and the pain is most in her chest now. Food needs to be pureed or mashed and frequent changes of dressings are required to absorb secretions.
She has a morphine patch and a Scopoderm patch to try to dry the discharge.
Anyone else living with this/observed this who has any advice on how to cope? Strategies that make life more comfortable/bearable? It would be nice to not feel so alone.
In September 2019 she was diagnosed with a recurrence and has declined surgery, radiotherapy and chemotherapy as she doesn't want anything which will make her feel worse than she already does.
The tumour has now grown onto her lip, a hole is in her cheek and the pain is most in her chest now. Food needs to be pureed or mashed and frequent changes of dressings are required to absorb secretions.
She has a morphine patch and a Scopoderm patch to try to dry the discharge.
Anyone else living with this/observed this who has any advice on how to cope? Strategies that make life more comfortable/bearable? It would be nice to not feel so alone.